I have a 30 yr old son that has Genetic Birth defect known as Prader-Willi Syndrome. he is currently in group home

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Customer: I have a 30 yr old son that has Genetic Birth defect known as Prader-Willi Syndrome. he is currently in group home especially for this syndrome and the county tells me that the funding will run out at the end of Oct.2022--they want to bring him back to Butler County but do not a facility to bring him back nor a staff trained to accommodate his needs. At what point do his needs become the primary focus and not county funds? He has had this defect since birth and it will never go away it is lifelong problem. I need to find an attorney to help me navigate the political funding nightmare. Any recommendation would be appreciated.
JA: Where is this occurring? I only ask because laws can vary by state.
Customer: Butler County Pa and my son lives in a facility in Langhorne Pa a 5 !/2 hr drive from Butler
JA: Are there any relevant dates or timelines to consider with this?
Customer: the county insists that the approval was for 180 days and those days will be up mid October 2022---when my son was first sent there the county told me the only other place they could place him was a State Hospital and we all know that those facilities are no longer open. My son was housed with ARC of Butler County for 14 1/2 years July 3 2021 he went to Butler Hospital for a stay and ARC would not take him back to his group home so I started hear there was no place to send him so he went to a CSRU unit for 180 days he was in a facility that he never got to go outside while he was there. Then on Feb 17, 2022 my husband I drove him to Langhorne Pa he is thriving in this setting and i worry that a disruption will be too hard for him
JA: Is there anything else the Lawyer should know before I connect you? Rest assured that they'll be able to help you.
Customer: Thank you for at least a glimmer of hope I am feeling very lonely in the boat that seems to be sinking
Answered by Jane Doe Deer in 10 hours 2 months ago
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Jane Doe Deer
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Jane Doe Deer, Expert

I am very happy to have been of some help to you. Do you have any more follow up questions, or is there anything in my answer you do not understand?

If I’ve answered to your complete and total satisfaction, may I mark your question as completed? You can still write to me after I mark it that way. I love to help!

Best,

Jane

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Jane Doe Deer, Expert

Good morning - I can't begin to imagine the challenges your family has faced in taking care of your son. You are clearly a warm and loving parent.

I have a few questions for you - I don't mean to overwhelm you so I'll just ask two to start, and may have more later.

1. Have you talked with any county social worker staff in the county in which Langhorne is located (or discussed funding with staff in the Langhome home where your son is living?)

2. Would you like me to provide you with information on how to find, vet, consult with, and possibly hire the right kind of attorney to help you?

(At Just Answer we cannot take on clients or even recommend a particular attorney or law firm)

Best,

Jane

PS I will be working on and off this week - there can sometimes be delays of several hours between my responses, and of course I have to sleep sometime!

Customer
I have talked to staff in Langhorne they want to keep my son but tell me that he is on the wrong kind of waiver program he is on cobsolidated waiver and needs to be on waiver 15 or 18 none of the people here know what that is. Help locating an attorney that does this kind of work would be appreciated. Thank you
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Jane Doe Deer, Expert

There are at least two types of attorneys who may be able to help you with this:

1. Trusts and estates attorneys (sometimes called elder law attorneys) - although one tends to think of these attorneys in terms of seniors, they can generally help anyone 18 or older with anything and everything regarding assistance from governmental entities. One source for such attorneys in every state is through: https://www.naela.org/

2. The other type of attorneys usually advertise themselves as disability attorneys.

I will be back in a minute to give you details on where/how to find attorneys. However, before I forget, you may also want to check with county, state, and federal disability advocacy organizations (some of which are designed to help friends and families of people with disabilities). You don't need to find these particularly for Prader-Willi Syndrome, and if there are any, you're probably already familiar with them - I'm thinking of general advocacy groups/organizations

I'll be right back.

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Jane Doe Deer, Expert

I apologize - I forgot to mention that the www.naela.org website is down right now. This is highly unusual; please check with that website in about an hour. My guess is that it's a temporary problem.

You may want to consult with two or three PA attorneys to obtain different opinions, if you are able to afford this. When you call attorneys’ offices, do not try to get the attorney on the phone. Make an appointment, as you would for a doctor, and expect to pay for the attorney’s time.

The first thing to do when you call a law office regarding a consultation with an attorney is make sure that no attorneys in the office represent any opposing parties, or any of the individuals involved. In your situation, it is very unlikely this will be a problem, but you need to check whether anyone represents the county(ies) involved, or the home where your son lives. After you make sure there’s no conflict of interest, ask how much the consultation will cost, and whether there’s an additional charge for reviewing documents before the meeting.

You can find attorneys in many ways. One is to search for the type of attorney you need in the PA State Bar’s Attorney Search: https://www.pabar.org/site/For-the-Public/Find-a-Lawyer

Another way is to check www.avvo.com There you will find attorneys and peer reviews. Other such sources are justia.org (com?) and Findlaw.com. If you do a Google search, be very leary of the numerous law firm ads online.

A third way to check with a county’s bar association and see if they have a lawyer referral service. You will probably pay a small fee for a 30 minute discussion. Be aware that these attorneys may be new, “green” attorneys, so be sure to interview them regarding their prior experience and SUCCESS.

When you are going through all the firms and trying to decide who to call for one of your two or three consultations, look for mid- to large-sized firms, because they’re going to have more resources.

As noted above, plan on two or three consultations. You can talk with any attorney licensed in PA, but a local (county) attorney will have a good sense of how local judges rule, should your matter have to go to court. When you consult with an attorney, you do not have to hire him or her. If you ARE thinking of hiring the attorney, ask questions like you would if you were interviewing an employee - how many SUCCESSFUL cases like mine have you handled? How much will this cost me? Can you set out a schedule for my case and stick to it? (You don't want to hire a procrastinator or has so much work on his or her plate he or or she won’t be able to help you quickly). You can ask for references, just as you would for hiring an employee; you can also check online reviews.

If you have your meeting on the phone or Zoom, so arrange to send relevant documents to the attorney before your consultation so that he or she can review them in advance (again, check ahead of time to determine whether there will be an additional charge for document review).

I will be on and off Just Answer this week. I look forward to answering any follow-up questions or concerns you may have. There can sometimes be delays on my end of several hours, depending on my schedule.

Best,

Jane

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Jane Doe Deer, Expert

Please let me know if I can be of any further help to you.  If I have answered your questions, please let me know that I may mark your question as "completed."

Best,

Jane

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Jane Doe Deer, Expert

Hello – I have not heard back from you and can only assume that you have no more follow-up questions, and that I have answered your question to your complete satisfaction. If not, be sure to write back to me with any follow-up questions you have. I ALWAYS reply!

Thank you for the opportunity to help you! Please ask for “Jane_Doe_Deer” when asking a question and state that you will wait for me to respond. You can also add me to your list of favorite experts.

Best wishes,

Customer/p>

Customer
Seems that there is no feasible solution to this problem Thank you for your help
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Jane Doe Deer, Expert

If I were in your shoes and could afford a consultation with an "elder law" or "trusts and estates" attorney, I would schedule an appointment with someone I found through naela.org - these attorneys are all certified experts in this field, and a PA attorney is going to know more details and workarounds than I will, working long-distance from another state.

Customer
Thank you I will investigate this idea.
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Jane Doe Deer, Expert

You're very welcome

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